The Woman Who Walked into the Sea
Huntington's and the Making of a Genetic Disease
Seiten
2008
Yale University Press (Verlag)
978-0-300-10502-5 (ISBN)
Yale University Press (Verlag)
978-0-300-10502-5 (ISBN)
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Presents the medical and social history of a devastating hereditary neurological disorder once demonized as 'the witchcraft disease'. This work covers the history of Huntington's in America. It uses Huntington's as a lens to explore the meanings of heredity, disability and medical knowledge among people as well as scientists and physicians.
This work presents a groundbreaking medical and social history of a devastating hereditary neurological disorder once demonized as 'the witchcraft disease'. When Phebe Hedges, a woman in East Hampton, New York, walked into the sea in 1806, she made visible the historical experience of a family affected by the dreaded disorder of movement, mind, and mood her neighbours called St. Vitus' dance. Doctors later spoke of Huntington's chorea, and today it is known as Huntington's disease. This book is the first history of Huntington's in America. Starting with the life of Phebe Hedges, Alice Wexler uses Huntington's as a lens to explore the changing meanings of heredity, disability, stigma, and medical knowledge among ordinary people as well as scientists and physicians.She addresses these themes through three overlapping stories: the lives of a nineteenth-century family once said to 'belong to the disease'; the emergence of Huntington's chorea as a clinical entity; and, the early-twentieth-century transformation of this disorder into a cautionary eugenics tale.
In our own era of expanding genetic technologies, this history offers insights into the social contexts of medical and scientific knowledge, as well as the legacy of eugenics in shaping both the knowledge and the lived experience of this disease.
This work presents a groundbreaking medical and social history of a devastating hereditary neurological disorder once demonized as 'the witchcraft disease'. When Phebe Hedges, a woman in East Hampton, New York, walked into the sea in 1806, she made visible the historical experience of a family affected by the dreaded disorder of movement, mind, and mood her neighbours called St. Vitus' dance. Doctors later spoke of Huntington's chorea, and today it is known as Huntington's disease. This book is the first history of Huntington's in America. Starting with the life of Phebe Hedges, Alice Wexler uses Huntington's as a lens to explore the changing meanings of heredity, disability, stigma, and medical knowledge among ordinary people as well as scientists and physicians.She addresses these themes through three overlapping stories: the lives of a nineteenth-century family once said to 'belong to the disease'; the emergence of Huntington's chorea as a clinical entity; and, the early-twentieth-century transformation of this disorder into a cautionary eugenics tale.
In our own era of expanding genetic technologies, this history offers insights into the social contexts of medical and scientific knowledge, as well as the legacy of eugenics in shaping both the knowledge and the lived experience of this disease.
Alice Wexler is a research scholar at the UCLA Center for the Study of Women and the author of Mapping Fate: A Memoir of Family, Risk, and Genetic Research.
| Erscheint lt. Verlag | 9.9.2008 |
|---|---|
| Zusatzinfo | Illustrations, facsims., geneal. tables, ports. |
| Sprache | englisch |
| Maße | 156 x 234 mm |
| Themenwelt | Medizin / Pharmazie ► Medizinische Fachgebiete ► Neurologie |
| Studium ► 2. Studienabschnitt (Klinik) ► Humangenetik | |
| Studium ► Querschnittsbereiche ► Geschichte / Ethik der Medizin | |
| ISBN-10 | 0-300-10502-9 / 0300105029 |
| ISBN-13 | 978-0-300-10502-5 / 9780300105025 |
| Zustand | Neuware |
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