Redefining Disability

Paul D. C. Bones, Jessica Smartt Gullion, Danielle Barber (Herausgeber)

Buch | Softcover

272 Seiten

2022
Brill (Verlag)
978-90-04-51268-9 (ISBN)

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Redefining Disability features all disabled authors and creators. By combining traditional academic works with personal reflections, graphic art, and poetry, the volume centers disability by drawing from the experiences and expertise of disabled individuals.

The reality of disability—of what it means to be disabled—has primarily been written by non-disabled people. Disability and disabled individuals are often described with pity, presented as burdens, or are background figures in larger non-disabled narratives. Redefining Disability challenges the outsider-dominated approach to disability by centering the disabled experience.

This edited volume, featuring all disabled authors and creators, combines traditional academic works with personal reflections, visual art, and poetry. These works address disability and race, sexuality and disability, disability cultures, accommodation, self-diagnosis, and how we manage the obstacles ableist institutions place in our way. The authors address a variety of disabilities, including sensory, chronic pain, mobility, developmental disorders, and mental illness. It is through these testimonies that we hope to redefine disability on our terms; to clearly state that disability is not a bad word, and that all disabled lives have value.

Redefining Disability is interdisciplinary, with broad application for undergraduate courses, graduate seminars, or to read for pleasure. Each entry contains discussion questions and/or activities for educators to use in the classroom.

Paul D. C. Bones, Ph.D. (2015), University of Oklahoma, is Assistant Professor of Sociology at Texas Woman’s University. He has published articles and book chapters on disability, hate crime, and criminology. This includes a recent article on access and accommodation during COVID-19 published in Socius (2021). Jessica Smartt Gullion, Ph.D. (2002), Texas Woman's University, is the Associate Dean of the College of Arts and Sciences and Associate Professor of Sociology at that university. She has published extensively in medical sociology and qualitative research methodology, including the award-winning Diffractive Ethnography: Social Sciences and the Ontological Turn (Routledge, 2018). Danielle Barber, M.S. (2018), Texas Woman's University, is a doctoral candidate in Sociology at that university. She conducts research on health and illness and on disability.

Preface

Acknowledgments

Notes on Contributors

Introduction

Paul D. C. Bones, Jessica Smartt Gullion and Danielle Barber

1 Existing in a Mortal Form and Other Disabling Experiences

E. J. K. Brimner and R. McGuire

2 Disabled Humans and Our Non-Human Animal Companions

Paul D. C. Bones

Pet Profile: Charlie

Aparna Nair

3 Disability Discourse Stuck in a Black/White Binary: Embodying a Black and Disabled Identity as a Mixed-Race Person

Cassandra Lovelock

4 Plum Tomato: Solanum lycopersicum

Ellen Samuels

5 Disability Aesthetics: A Crip Artistry Manifesto

Aurora Berger

6 Life on the Line

Aurora Berger

7 Finding My Way in a Society Where I Don’t Fit

Jill Richardson

Pet Profile: Mac

Valerie and Chase Novack

8 Misfit in the Academy: Succeeding as a Visually Impaired Scholar in Australia

Sheelagh Daniels-Mayes

Pet Profile: Mudkip

Ari

9 Justice vs. Injustice: Poetic Dialogue about the Meaning of Disability Justice among People Labelled/with Intellectual Disability

Anonymous, Anonymous, Anonymous, Nicholas Herd, Anonymous, Doreen Kalifer, with support from Erin Kuri and Ann Fudge Schormans

10 Inspiration Porn and Desperation Porn: Disrupting the Objectification of Disability in Media

Kara B. Ayers and Katherine A. Reed

Pet Profile: Scribbles

Melanie Coughlin

11 Tap Tap Tap

Marie Gagnon

12 Adaptation from the Margins: Toward a Crip Theatre

Christopher Bryant

Pet Profile: Pepper

Brian

13 Diagnosis Limbo

Danielle Barber

Pet Profile: Luther & Layla

Danielle Barber

14 Successful Sad

Vanessa Ellison

Pet Profile: Monkey

Emily Dall’Ora Warfield

15 Ddeaf Adjacency: Liminal Conditions of Not Hearing

Megan Marshall

16 S-I-L-I-C-O-N-E Inject-Ear | Silicone Injections: In American Sign Language (ASL) Gloss and English

Raymond Luczak

17 Utensils and Fire

Jessica Spears Williams

18 Seeing Brains: Shakespeare, Autism, and Self-Identification

Nicholas R. Helms

Pet Profile: Pike Trickleg

Lauren (aka L.W. Salinas)

19 Hot Girl Bummer: Achieving Disabled Sexual Liberation in an Ableist World

Katherine O’Connell

Pet Profile: Abacus

Kimberly C. Merenda

20 Selected Poems

Jessi Aaron

Pet Profile: Opal, Orbit, & Ruby

Aubree Evans

21 Maybe Do Talk to Strangers on the Internet? An Interview with Corin de Parsons Frietas

Corin Parsons de Frietas (with Paul D. C. Bones)

Pet Profile: Finn & Bear

Corin Parsons de Freitas

22 Finding Empowerment in the Middle: Navigating Hidden Disabilities in Academia

Summer M. Jackson

Pet Profile: Rocko (More Formally Known as Rocko Taco)

Summer M. Jackson

23 Taking Center Stage in the Face of Shame and Scars

Jasmine (Jaz) Gray

Pet Profile: Aisling & Truthe

Jennifer Stahl

24 Assistive Tech, Assertive Tech

Cole Sorensen

25 Modern Day Changelings: On Being an Autistic Parent of an Autistic Child

Alison Kelly

26 Stone, Water, Land, Spine

Elizabeth Glass

Pet Profile: Maximus Aurelius Gullion, Guardian of the Realm, Slayer of Demons, Friend to Unicorn and Dragon, Defender of Squeaky Toys & Spartacus the Mighty

Jessica Smartt Gullion

27 Cancer Isn’t Like a Movie, But If It Was It’d Be a Horror Flick

Terri Juneau Eklund

Pet Profile: Bacon & Pancake

Terri Juneau Eklund

28 “It’s Meant to Be a Hazing Process”: Deciphering Ableism Surrounding Academic Accommodations

Corey Reutlinger

Pet Profile: Captain Jack Harkness & Pippa Millicent Tiny Panther

Tara Elliot

29 Night of the Living Ableds: Disability, Representation, and Horror Film

Paul D. C. Bones

Pet Profile: Mildred Sausage, Allan Hamsteak, & Inara Bacon

Paul D. C. Bones

30 A Bright Green: After Lou Ferrigno, A Deaf Bodybuilder Who Played the Incredible Hulk (1977–1982)

Raymond Luczak

31 Manifesto

The Committee for the Sick and Useless

Erscheinungsdatum	18.02.2022
Reihe/Serie	Personal/Public Scholarship ; 12
Verlagsort	Leiden
Sprache	englisch
Maße	155 x 235 mm
Gewicht	509 g
Themenwelt	Sozialwissenschaften ► Pädagogik ► Didaktik
Themenwelt	Sozialwissenschaften ► Pädagogik ► Sonder-, Heil- und Förderpädagogik
ISBN-10	90-04-51268-3 / 9004512683
ISBN-13	978-90-04-51268-9 / 9789004512689
Zustand	Neuware