Until We Knew
Life With MND/ALS and FTD
Seiten
2023
Foxridge & Camberbatch (Verlag)
978-1-915406-99-6 (ISBN)
Foxridge & Camberbatch (Verlag)
978-1-915406-99-6 (ISBN)
Elisabet's husband was not yet sixty when diagnosed with Amyotrophic lateral sclerosis (ALS) and frontotemporal dementia (FTD). By sharing her story, Elisabet hopes to contribute and raise awareness of FTD and ALS.
Elisabet's husband was not yet sixty when diagnosed with Amyotrophic lateral sclerosis (ALS) and frontotemporal dementia (FTD). This notebook, a retrospective diary, is about the year they lived with his illnesses; illnesses neither knew nothing about before the slow and challenging path towards diagnoses. Elisabet took care of her husband while his increasing needs progressed with the diseases. A day-to-day roller coaster with each day full of emotions, some conflicting. With two small children, Elisabet initiated an evening routine which was to address the illness with the children head on by dedicating time to talk about it. Special moments were filed away as memories and this became their goodnight story.
Elisabet's husband was not yet sixty when diagnosed with Amyotrophic lateral sclerosis (ALS) and frontotemporal dementia (FTD). This notebook, a retrospective diary, is about the year they lived with his illnesses; illnesses neither knew nothing about before the slow and challenging path towards diagnoses. Elisabet took care of her husband while his increasing needs progressed with the diseases. A day-to-day roller coaster with each day full of emotions, some conflicting. With two small children, Elisabet initiated an evening routine which was to address the illness with the children head on by dedicating time to talk about it. Special moments were filed away as memories and this became their goodnight story.
Elisabet did her BA at Lund University and made a career in education. She was especially interested in language learning. When her husband fell ill and his speech was affected, she realised how people are interpreted and valued according to how they speak. The family moved to Belgium and then to England, a country she made a home in as a teenager. Elisabet now lives in southern Sweden and her sense of longing pervades her story.
| Erscheinungsdatum | 14.11.2022 |
|---|---|
| Sprache | englisch |
| Themenwelt | Literatur ► Biografien / Erfahrungsberichte |
| Sachbuch/Ratgeber ► Gesundheit / Leben / Psychologie ► Krankheiten / Heilverfahren | |
| ISBN-10 | 1-915406-99-4 / 1915406994 |
| ISBN-13 | 978-1-915406-99-6 / 9781915406996 |
| Zustand | Neuware |
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