Family Disease (eBook)

A Memoir of Multigenerational Ataxia

Creighton Dana Lorene Creighton (Autor)

eBook Download: EPUB

2020
202 Seiten
McFarland & Company, Inc., Publishers (Verlag)
978-1-4766-4195-9 (ISBN)

Infos

Dana Creighton and her mother both were affected by the same inherited cerebellar degeneration, known as ataxia--a loss of control over body movements. Both were treated by a healthcare system that failed them in different ways. Yet their experiences were disparate. Creighton eventually found the right tools to piece together meaning in her life; her mother resisted accepting her condition, in part because doctors repeatedly said nothing was wrong with her. Twenty-five years after her mother's suicide, Creighton's memoir finds striking similarities and differences in their lives and traces a lineage of family trauma. Drawing on research in neuroplasticity, medical records, personal correspondence and genealogy, the author highlights the gap between the lived experience of a debilitating ailment and the impersonal aims of clinicians. She shows how the stories parents tell themselves about living with a genetic disorder influences how they communicate it to their children.

Produkt-Details

• Erscheint lt. Verlag: 29.12.2020
• Sprache: englisch
• Themenwelt: Sachbuch/Ratgeber ► Gesundheit / Leben / Psychologie ► Krankheiten / Heilverfahren
• Themenwelt: Medizin / Pharmazie ► Medizinische Fachgebiete
• Themenwelt: Sozialwissenschaften ► Soziologie ► Mikrosoziologie
• ISBN-10: 1-4766-4195-1 / 1476641951
• ISBN-13: 978-1-4766-4195-9 / 9781476641959