Genetics and Ethics in Global Perspective

Dorothy C. Wertz, John C. Fletcher (Autoren)

Buch | Softcover

474 Seiten

2004 | Softcover reprint of the original 1st ed. 2004
Springer-Verlag New York Inc.
978-1-4020-2880-9 (ISBN)

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Dorothy Wertz and John Fletcher pioneered the first international study of ethical and social issues in genetics in 18 nations. This book reports and discusses their second and more representative study in 36 nations. The survey focused on actual situations that occur in the practice of medical genetics, presented as case vignettes that can also be used in teaching and policy discussion. Among the issues discussed are privacy, prenatal diagnosis, patient autonomy, directiveness in counseling, sex selection, forensic DNA banking, "genetic discrimination," and "eugenics".
This is Dorothy Wertz's final book, as she died in April, 2003. It is a one of a kind cross-cultural study of complex ethical issues in the uses of genetic information. No one else has attempted to look at the international aspects of medical genetics on such a broad scale. The results provide a resource for discussion both within and among nations. Much bioethical and policy discussion now occurs in an information vacuum. The survey showed that what people would do, and their reasons for doing it, differed considerably from what ethicists think they "should" do. Many will be surprised at the results, especially in nations where bioethical discussion is just beginning.
Genetics and Ethics in Global Perspective is of interest to medical geneticists, genetic counselors, social scientists and anthropologists who study cross-cultural issues, bioethicists and bioethics centers and health policy makers.

I: The Survey And Its Results.- 1. The 36-Nation Survey.- 2. Global Inequity.- 3. The Rise of Autonomy.- 4. Counseling: Directive and Nondirective.- 5. Is Modern Genetics Eugenics?.- 6. Genetics as a Family Affair.- 7. Privacy, Discrimination, and Public Health.- 8. The Geography of Ethical Reasoning.- References for Chapters 1–8.- II: Reports From Our Colleagues: Genetics and Ethics In Individual Nations.- 9. Geneticists Speak Out: Culture, Ethics, and History.- 10. Organization of Genetic Services.- 11. Laws Affecting Genetic Services.- 12. China: Views of a Bioethicist.- 13. China: Views of a Geneticist.- 14. Germany.- 15. Hungarian TV Viewers' Responses.- 16. India.- 17. Japan.- 18. Peru.- III: Ethics and Genetics in Global Perspective.- 19. From Genetics to Genomics and Beyond.- 20. Moral Priorit ies, Cases and Practices in Medical Genetics.- About the Authors.- Tables for Chapters 1-8.- Appendix: WHO Proposed International Guidelines.

Erscheint lt. Verlag	4.11.2004
Reihe/Serie	"International Library of Ethics, Law, and the New Medicine " ; 17
Zusatzinfo	X, 474 p.
Verlagsort	New York, NY
Sprache	englisch
Maße	170 x 244 mm
Themenwelt	Geisteswissenschaften ► Philosophie ► Allgemeines / Lexika
	Geisteswissenschaften ► Philosophie ► Ethik
	Medizin / Pharmazie ► Medizinische Fachgebiete
	Studium ► 2. Studienabschnitt (Klinik) ► Humangenetik
	Naturwissenschaften ► Biologie
	Sozialwissenschaften ► Soziologie
ISBN-10	1-4020-2880-6 / 1402028806
ISBN-13	978-1-4020-2880-9 / 9781402028809
Zustand	Neuware