Crucible of the Incurable

Facing ALS

Anthony Stavrianakis (Autor)

Buch | Softcover

248 Seiten

2024
Cornell University Press (Verlag)
978-1-5017-7832-2 (ISBN)

Artikel merken

Crucible of the Incurable concerns how people face life with amyotrophic lateral sclerosis (ALS). Anthony Stavrianakis spent a year in clinics and with people living with the illness in the United States. He examines the multiple meanings of care in a context of a chronic, degenerative, one-hundred percent fatal, neuromuscular illness, whose most common duration is between two and five years. How do people diagnosed with ALS continue to "live as well as possible, for as long as possible" in accordance with the normative work at the heart of outpatient ALS care? Crucible of the Incurable shows how those touched by the situation of a person living with ALS bear this problem and this task. Given the sense of certitude around the diagnosis, given past experiences of those aware of its usual progression, and given the uncertainty of the disease's cause and its progression for each specific person; how then do people orient themselves to the experience of life with this illness, how to support those who are confronted with it, and how to provide aid or solace.

Anthony Stavrianakis is a CNRS Researcher at the Laboratoire d'ethnologie et de sociologie comparative, University of Paris, Nanterre. His anthropological work concerns the logic of inquiry in the sciences, and questions of knowledge, truth, and subjectivity in the fields of medicine, art and psychoanalysis.

On Linking Knowledge and Care for ALS

The Emergence of a Diagnostic Certitude

Nosological Indeterminations

Multidisciplinary ALS Care

ALS Clinic

Palliative Care Clinic

Epistles to Ones

Plea for a Blessing

Advocate

The Incurable and The Possible

Erscheinungsdatum	02.10.2024
Reihe/Serie	Expertise: Cultures and Technologies of Knowledge
Verlagsort	Ithaca
Sprache	englisch
Maße	152 x 229 mm
Gewicht	454 g
Themenwelt	Medizin / Pharmazie ► Medizinische Fachgebiete
	Sozialwissenschaften ► Ethnologie
	Sozialwissenschaften ► Soziologie
ISBN-10	1-5017-7832-3 / 1501778323
ISBN-13	978-1-5017-7832-2 / 9781501778322
Zustand	Neuware