Spaces on the Spectrum
How Autism Movements Resist Experts and Create Knowledge
Seiten
2024
Columbia University Press (Verlag)
978-0-231-20613-6 (ISBN)
Columbia University Press (Verlag)
978-0-231-20613-6 (ISBN)
Winner 2024 Sociology of Disability in Society Outstanding Publication Award, Disability in Society Section, American Sociological Association
Movements that take issue with conventional understandings of autism spectrum disorder, a developmental disability, have become increasingly visible. Drawing on more than three years of ethnographic fieldwork and interviews with participants, Catherine Tan investigates two autism-focused movements, shedding new light on how members contest expert authority. Examining their separate struggles to gain legitimacy and represent autistic people, she develops a new account of the importance of social movements as spaces for constructing knowledge that aims to challenge dominant frameworks.
Spaces on the Spectrum examines the autistic rights and alternative biomedical movements, which reimagine autism in different and conflicting ways: as a difference to be accepted or as a sickness to treat. Both, however, provide a window into how ideas that conflict with dominant beliefs develop, take hold, and persist. The autistic rights movement is composed primarily of autistic adults who contend that autism is a natural human variation, not a disorder, and advocate for social and cultural inclusion and policy changes. The alternative biomedical movement, in contrast, is dominated by parents and practitioners who believe in the disproven idea that vaccines trigger autism and seek to reverse it with scientifically unsupported treatments. Both movements position themselves in opposition to researchers, professionals, and parents outside their communities. Spaces on the Spectrum offers timely insights into the roles of shared identity and communal networks in movements that question scientific and medical authority.
Movements that take issue with conventional understandings of autism spectrum disorder, a developmental disability, have become increasingly visible. Drawing on more than three years of ethnographic fieldwork and interviews with participants, Catherine Tan investigates two autism-focused movements, shedding new light on how members contest expert authority. Examining their separate struggles to gain legitimacy and represent autistic people, she develops a new account of the importance of social movements as spaces for constructing knowledge that aims to challenge dominant frameworks.
Spaces on the Spectrum examines the autistic rights and alternative biomedical movements, which reimagine autism in different and conflicting ways: as a difference to be accepted or as a sickness to treat. Both, however, provide a window into how ideas that conflict with dominant beliefs develop, take hold, and persist. The autistic rights movement is composed primarily of autistic adults who contend that autism is a natural human variation, not a disorder, and advocate for social and cultural inclusion and policy changes. The alternative biomedical movement, in contrast, is dominated by parents and practitioners who believe in the disproven idea that vaccines trigger autism and seek to reverse it with scientifically unsupported treatments. Both movements position themselves in opposition to researchers, professionals, and parents outside their communities. Spaces on the Spectrum offers timely insights into the roles of shared identity and communal networks in movements that question scientific and medical authority.
Catherine Tan is an assistant professor in the Department of Sociology at Vassar College.
Preface and Position
Acknowledgments
1. Warriors and Aliens: Challenging Autism Experts
2. Reimagining Autism: As a Difference to Accept, as a Sickness to Treat
3. Seeking Hope and Support: Pathways to Autism Movements
4. Knowing One’s Tribe: The Transformation of Autistic Rights Into Reality
5. Laboratories and Experimentation: The Tools and Strategies of “Recovery”
6. The Outsiders: Resisting Criticism and Claiming Legitimacy
7. Making Space for the Spectrum
Appendix A. Interview Protocols
Appendix B. Participants
Notes
Bibliography
Index
| Erscheinungsdatum | 08.12.2023 |
|---|---|
| Verlagsort | New York |
| Sprache | englisch |
| Maße | 140 x 216 mm |
| Themenwelt | Geisteswissenschaften ► Psychologie ► Persönlichkeitsstörungen |
| Medizin / Pharmazie ► Medizinische Fachgebiete ► Neurologie | |
| Sozialwissenschaften ► Politik / Verwaltung | |
| Sozialwissenschaften ► Soziologie | |
| ISBN-10 | 0-231-20613-5 / 0231206135 |
| ISBN-13 | 978-0-231-20613-6 / 9780231206136 |
| Zustand | Neuware |
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