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Embodied Narratives - Emily Postan

Embodied Narratives

Protecting Identity Interests through Ethical Governance of Bioinformation

(Autor)

Buch | Softcover
314 Seiten
2023
Cambridge University Press (Verlag)
978-1-108-71819-6 (ISBN)
CHF 41,85 inkl. MwSt
As increasing quantities of health and biological information are generated, the need for us all to consider the human impacts of its ubiquity becomes more urgent than ever. This book explains the ethical imperative to take seriously the potential impacts on our identities of encountering bioinformation about ourselves.
Increasing quantities of information about our health, bodies, and biological relationships are being generated by health technologies, research, and surveillance. This escalation presents challenges to us all when it comes to deciding how to manage this information and what should be disclosed to the very people it describes. This book establishes the ethical imperative to take seriously the potential impacts on our identities of encountering bioinformation about ourselves. Emily Postan argues that identity interests in accessing personal bioinformation are currently under-protected in law and often linked to problematic bio-essentialist assumptions. Drawing on a picture of identity constructed through embodied self-narratives, and examples of people's encounters with diverse kinds of information, Postan addresses these gaps. This book provides a robust account of the source, scope, and ethical significance of our identity-related interests in accessing – and not accessing – bioinformation about ourselves, and the need for disclosure practices to respond appropriately. This title is also available as Open Access on Cambridge Core.

Emily Postan is a chancellor's fellow in Bioethics at the University of Edinburgh Law School and a deputy director of the J Kenyon Mason Institute for Medicine Life Sciences and the Law. Her principal research interests lie in the ethical and regulatory implications of the impacts of health technologies and health data on our identities, group memberships, and relationships with others. Her wider research includes work in neuroethics, reproductive ethics, and regulation of health research.

1. Attending to identity; 2. Mapping the landscape; 3. Narrative self-constitution; 4. Bioinformation in embodied identity narratives; 5. Encounters with bioinformation: three examples; 6. Locating identity interests; 7. Responsibilities for disclosure; 8. Protecting identity in practice.

Erscheinungsdatum
Reihe/Serie Cambridge Bioethics and Law
Zusatzinfo Worked examples or Exercises
Verlagsort Cambridge
Sprache englisch
Maße 151 x 229 mm
Gewicht 460 g
Themenwelt Medizin / Pharmazie Medizinische Fachgebiete Medizinethik
Studium Querschnittsbereiche Geschichte / Ethik der Medizin
Recht / Steuern EU / Internationales Recht
Recht / Steuern Privatrecht / Bürgerliches Recht Berufs-/Gebührenrecht
Recht / Steuern Privatrecht / Bürgerliches Recht Medizinrecht
ISBN-10 1-108-71819-1 / 1108718191
ISBN-13 978-1-108-71819-6 / 9781108718196
Zustand Neuware
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