Living with HHT
Understanding and Managing Your Hereditary Hemorrhagic Telangiectasia
Seiten
2018
Johns Hopkins University Press (Verlag)
978-1-4214-2390-6 (ISBN)
Johns Hopkins University Press (Verlag)
978-1-4214-2390-6 (ISBN)
This guide is essential for health professionals seeking more information about this underdiagnosed disease.
Hereditary Hemorrhagic Telangiectasia (HHT) is a rare genetic disorder that causes blood vessel abnormalities in the nose, skin, gastrointestinal tract, lungs, brain, and liver. Nosebleeds are the most common symptom of HHT, but abnormal vessels in other organs, if they are not diagnosed and treated, can lead to serious medical complications, including stroke, hemorrhage, anemia, and brain abscess. Psychologist Sara Palmer, who has HHT herself and is an expert in helping people cope with health conditions, draws on current research as she thoroughly describes the symptoms of HHT, explains how the diagnosis is made (and often missed), and details treatment options. While addressing the medical aspects of HHT, Palmer also reveals how people affected by the disorder can maintain their emotional health, take care of family members, and live life as fully as possible. Enriched with illustrations, personal stories of people living with HHT, a glossary, and contact information for the HHT Centers of Excellence (which provide coordinated medical treatment for people with the disorder), Living with HHT is a complete resource for individuals with HHT and their families.
This guide is also essential for health professionals seeking more information about this underdiagnosed disease.
Hereditary Hemorrhagic Telangiectasia (HHT) is a rare genetic disorder that causes blood vessel abnormalities in the nose, skin, gastrointestinal tract, lungs, brain, and liver. Nosebleeds are the most common symptom of HHT, but abnormal vessels in other organs, if they are not diagnosed and treated, can lead to serious medical complications, including stroke, hemorrhage, anemia, and brain abscess. Psychologist Sara Palmer, who has HHT herself and is an expert in helping people cope with health conditions, draws on current research as she thoroughly describes the symptoms of HHT, explains how the diagnosis is made (and often missed), and details treatment options. While addressing the medical aspects of HHT, Palmer also reveals how people affected by the disorder can maintain their emotional health, take care of family members, and live life as fully as possible. Enriched with illustrations, personal stories of people living with HHT, a glossary, and contact information for the HHT Centers of Excellence (which provide coordinated medical treatment for people with the disorder), Living with HHT is a complete resource for individuals with HHT and their families.
This guide is also essential for health professionals seeking more information about this underdiagnosed disease.
Sara Palmer, PhD, is a psychologist and an assistant professor in the Department of Physical Medicine and Rehabilitation at Johns Hopkins University School of Medicine. She is the coauthor of Spinal Cord Injury: A Guide for Living; When Your Spouse Has a Stroke: Caring for Your Partner, Yourself, and Your Relationship; and Just One of the Kids: Raising a Resilient Family When One of Your Children Has a Physical Disability.
Acknowledgments
Introduction
Part I
1. Diagnosis
2. The Trouble with Telangiectasias
3. HHT's Hidden Dangers
Part II
4. Taking Care of Yourself
5. Taking Care of Your Family
6. Beyond the Family
Part III
7. Frontiers in HHT Research
Notes
Glossary
Resources
Index
| Erscheinungsdatum | 13.02.2018 |
|---|---|
| Reihe/Serie | A Johns Hopkins Press Health Book |
| Zusatzinfo | 9 Illustrations, black and white |
| Verlagsort | Baltimore, MD |
| Sprache | englisch |
| Maße | 152 x 229 mm |
| Gewicht | 272 g |
| Themenwelt | Sachbuch/Ratgeber ► Gesundheit / Leben / Psychologie |
| Medizin / Pharmazie ► Medizinische Fachgebiete | |
| Studium ► 2. Studienabschnitt (Klinik) ► Humangenetik | |
| ISBN-10 | 1-4214-2390-1 / 1421423901 |
| ISBN-13 | 978-1-4214-2390-6 / 9781421423906 |
| Zustand | Neuware |
| Haben Sie eine Frage zum Produkt? |
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