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When Science Offers Salvation - Rebecca Susan Dresser

When Science Offers Salvation

Patient Advocacy and Research Ethics
Buch | Hardcover
232 Seiten
2001
Oxford University Press Inc (Verlag)
978-0-19-514313-3 (ISBN)
CHF 99,10 inkl. MwSt
This volume shows how advocates have transformed health research, often - but not always - for the better. Dresser examines patient advocacy through the lens of research ethics. Her book recounts the advocacy contribution to research and explores the thorny ethical issues facing research advocates.
Biomedical research today has a high public profile, largely because of patient advocacy. Following in the footsteps of HIV/AIDS activists, advocates representing an array of patient groups are now vocal partners in the research enterprise. This book shows how advocates have transformed health research, often - but not always - for the better.
Dresser is the first to examine patient advocacy through the lens of research ethics. She exposes the bright and dark sides of patients' expanded opportunities to enroll in clinical trials and join researchers in planning and evaluating studies. She considers the virtues and drawbacks of giving patients more influence over how the government invests its research dollars. She argues that advocates should do more to promote ethical human studies and responsible media reporting about research.
Patient advocates can help make research more ethical, but advocacy raises ethical issues of its own. This book clearly and vividly recounts the advocacy contribution to research and explores the thorny ethical issues facing research advocates.

1. Patient Advocacy and the Changing Research Environment ; 2. Advocates on the Research Team - Shaping and Assessing Science ; 3. Hope Versus Hypothesis Testing: Expanding Access to Experimental Interventions ; 4. Fairness in Allocating Government Research Funds ; 5. Public Participation in Allocating Government Research Funds ; 6. Advocates in Research Ethics Oversight: A Voice for the Public? ; 7. Advocacy for Accuracy in Research Reporting ; 8. Research Advocacy Today and Tomorrow

Erscheint lt. Verlag 10.5.2001
Verlagsort New York
Sprache englisch
Maße 152 x 226 mm
Gewicht 499 g
Themenwelt Medizin / Pharmazie Medizinische Fachgebiete Medizinethik
Studium Querschnittsbereiche Geschichte / Ethik der Medizin
ISBN-10 0-19-514313-2 / 0195143132
ISBN-13 978-0-19-514313-3 / 9780195143133
Zustand Neuware
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