Family Communication about Genetics
Oxford University Press Inc (Verlag)
978-0-19-536982-3 (ISBN)
This handbook facilitates the development of clinical practices relating to family communication about genetics. Relevant theories of family communication are summarized and related to a clinical genetics milieu and, from this, frameworks for practitioners are presented. A book of this nature is particularly timely as the completion of the Human Genome Project will result in an unprecedented amount of information about genetic constitution and health risks becoming available to individuals and their families. The presence of a potentially genetic condition in a family is not a new phenomenon. However, the growth in testing for genetic conditions, common complex conditions and variants that may influence health as well as drug metabolism means that a greater number of individuals will face decisions about communicating this information to their relatives. Many health professionals in all levels of health care will be confronted with issues of responsibility and practice in family communication about genetic information as they become providers of this testing.
Clara L. Gaff, PhD, is a certified Genetic Counsellor (Australasia), who has practiced in Australia and the United Kingdom with a focus on cancer genetics. She has been active in genetic counselling training programs and the education of health professionals in genetics. She is currently a Senior Genetic Counsellor and Clinical Associate Professor and editorial board member of the Journal of Genetic Counseling. Carma Bylund, Ph.D. is a behavioral scientist with expertise in family and clinical communication. She teaches communication skills to practicing clinicians and studies this process as well as other facets of clinical and family communication. She is currently Director of the Communication Skills Research and Training Laboratory at Memorial Sloan-Kettering Cancer Center and Assistant Professor of Psychology at Weill Cornell Medical College.
Contents
Introduction
- Clara L. Gaff, Carma L. Bylund
Chapter 1: Principles of Family Communication
- Carma L. Bylund, Kathleen M. Galvin, Clara L. Gaff
Chapter 2: Concepts in Genetic Healthcare
- Clara L. Gaff, Sylvia Metcalfe
Chapter 3: Societal, expert, and lay influences
- Roxanne Parrot, Michelle Miller-Day, Kathryn Peters, James Dillard
Chapter 4: Family Narratives
- April Trees, Jody Koenig-Kellas, Myra Roche
Chapter 5: Timescapes
- Maggie Gregory, Anna Middleton, Paul Atkinson
Chapter 6: Family Systems
- Kathleen M. Galvin, Mary-Anne Young
Chapter 7: Management of Privacy Ownership and Disclosure
- Sandra Petronio, Clara L. Gaff
Chapter 8: Management of Uncertainty
- Heather Skirton, Carma L. Bylund
Chapter 9: Attributions and Personal Theories
- Marion F. McAllister, Christina M. Sabee
Chapter 10: Communication Goals and Plans
- Jennifer A. Samp, Melanie Watson, Amanda Strickland
Chapter 11: Genetic Counseling and Family Communication Patterns
- Ascan Koerner, Pat McCarthy Veach , Bonnie LeRoy
Chapter 12: Ethical Perspectives
- Samantha J. Leonard, Ainsley Newson
Chapter 13: Legal Perspectives of Family Communication
- Loane Skene, Laura Forrest
Chapter 14: Helping Parents Talk to their Children
- Jennifer Sullivan, Allyn McConkie-Rosell
Chapter 15: Facilitating Family Communication about Genetics in Practice
- Clara L. Gaff, Kathleen M. Galvin, Carma L. Bylund
Appendix
| Erscheint lt. Verlag | 1.7.2010 |
|---|---|
| Zusatzinfo | 7 illustrations |
| Verlagsort | New York |
| Sprache | englisch |
| Maße | 236 x 160 mm |
| Gewicht | 596 g |
| Themenwelt | Studium ► 2. Studienabschnitt (Klinik) ► Humangenetik |
| ISBN-10 | 0-19-536982-3 / 0195369823 |
| ISBN-13 | 978-0-19-536982-3 / 9780195369823 |
| Zustand | Neuware |
| Haben Sie eine Frage zum Produkt? |
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