Supporting People with Dementia Using Pervasive Health Technologies (eBook)

Maurice D Mulvenna, Chris D. Nugent (Herausgeber)

eBook Download: PDF

2010 | 2010
XII, 226 Seiten
Springer London (Verlag)
978-1-84882-551-2 (ISBN)

Infos

Information and communication technologies can provide new paradigms in healthcare provision. In particular, new Pervasive Healthcare technologies can revolutionise the dynamics of healthcare, enabling people to remain at home for longer, at lower costs to health and welfare organisations.

This book reveals how pervasive healthcare technologies can be designed in conjunction with users and carers, as well as exploring the application of novel methods and technologies.

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Information and communication technologies can provide new paradigms in healthcare provision. In particular, new Pervasive Healthcare technologies can revolutionise the dynamics of healthcare, enabling people to remain at home for longer with lower costs to health and welfare organisations. This book reveals how pervasive healthcare technologies have been designed in conjunction with users and carers. It explores the application of novel methods and technologies, encompassing the research, design and evaluation of a new set of pervasive healthcare solutions. An introduction to pervasive healthcare systems and services developed for people with dementia, this book describes this multidisciplinary area, primarily from a perspective of user need. Key topics covered include: - ICT for Inclusion- Pervasive healthcare - Smart homes - Ambient Assisting Living - Assistive technology- Cognitive prosthetics- Design process- User centred design- Context aware computing- Ethical considerationsThis book will be of interest to healthcare practitioners developing new health and social care paradigms; researchers and students engaged in pervasive computing studies; ubiquitous computing and mobile computing researchers; and clinicians who are working with technical researchers.

Inhalt

Foreword 6
Contents 8
Contributors 10
Part I Background 14
1 Supporting People with Dementia Using Pervasive Healthcare Technologies 15
1.1 Introduction 15
1.2 Why Select Mild Dementia? 16
1.3 The European Policy Landscape 18
1.3.1 Demographic Ageing 18
1.3.2 The Care Burden 19
1.3.3 European Policy Areas 19
1.4 Pervasive Healthcare Technology and Services 20
1.5 Background to the Research 20
1.6 The Role of the User in the Design Process 22
1.7 Pervasive Healthcare Technology 23
1.8 Evaluation and Assessment of Cognitive Prosthetics 23
1.9 The Way Ahead 24
References 25
2 Prevalence and Clinical Features of Dementia 27
2.1 Definition and Overview 27
2.2 Historical Background 28
2.3 Extent of Dementia 29
2.4 Health Economic Impact 29
2.5 Dementia Subtypes 30
2.6 Relationship Between Normal Ageing and Dementia 30
2.7 Risk Factors for Dementia 31
2.8 Burden of Illness for Patient and Carer 31
2.9 Management of Dementia 32
References 33
3 State of the Art in Electronic Assistive Technologies for People with Dementia 34
3.1 Introduction 34
3.2 Support for Memory 36
3.3 Support for Daily Life Activities 37
3.4 Support for Social Contacts 40
3.5 Enhancing Feeling of Safety 41
3.6 Conclusion 45
References 45
4 Review of ICT-Based Services for Identified Unmet Needs in People with Dementia 47
4.1 Introduction 48
4.2 Method 49
4.2.1 Selection Criteria 50
4.2.2 Search Procedure 51
4.2.3 Analysis 51
4.3 Results 52
4.3.1 Need for General and Personalized Information 52
4.3.1.1 Information on Dementia 52
4.3.1.2 Information on Service Offerings 52
4.3.1.3 Information on Legal and Financial Issues and on Care and Support Services 53
4.3.1.4 Information on Personal Condition, Care Appointments and Care Planning 53
4.3.2 Need for Support with Regard to Symptoms of Dementia 54
4.3.2.1 ICT Compensation for Disabilities Such as Memory Problems 54
4.3.2.2 ICT Supporting the Carer, Flexibly and Personalized, in Instrumental Care 56
4.3.2.3 ICT Support for People with Dementia and Carers with Regard to Behavioural and Psychological Changes and How to Cope with Them 57
4.3.2.4 Emotional Support for People with Dementia and Carers 58
4.3.3 Need for Social Contact and Company for the Person with Dementia 58
4.3.4 Need for Health Monitoring and Perceived Safety 60
4.4 Conclusion and Discussion 62
4.4.1 Available ICT-Based Services per Needs Area 62
4.4.2 Limitations of the Current Study 63
4.4.3 Societal Relevance 64
4.4.4 Technological Interest and Research Recommendations 65
References 66
5 Assistive Technologies and Issues Relating to Privacy, Ethics and Security 72
5.1 Introduction 72
5.2 Technology Options from a User Perspective 73
5.3 Ethics 74
5.4 Privacy 75
5.5 Security 76
5.6 Discussion on Ethical Practice and Technology Use 77
5.6.1 Explicitness, Legal and Procedural Context 78
5.6.2 Person-Centred Approach 79
5.6.3 Care Staff Training 79
5.6.4 Protection and Paternalism 79
5.6.5 Information, Demonstration and Individual Consent 80
5.7 Summary and Conclusions 81
5.8 Appendix: Checklists to Assist Using Technology with People Who Have Dementia 82
For Professionals and Field Test Personnel 82
For Developers 83
For Researchers 84
References 84
Part II The Role of the User in the Design Process 86
6 Identifying User Needs and the Participative Design Process 87
6.1 Introduction 88
6.2 Method 90
6.2.1 Design 90
6.2.2 Sample and Setting 90
6.2.3 Measurement 91
6.2.4 Procedure 91
6.2.5 Analysis 93
6.3 Results 93
6.3.1 Sample Characteristics 94
6.3.2 Met and Unmet Needs and Wishes of Persons with Dementia 94
6.3.2.1 Support for Memory 94
6.3.2.2 Support for Social Contacts 97
6.3.2.3 Support for Daily Activities 97
6.3.2.4 Feelings of Safety 98
6.3.3 Disabilities, Personal and Context Information Relevant for Developing ICT Solutions 98
6.3.4 Final Top Four List 98
6.4 Discussion and Conclusion 104
References 107
7 Managing the Transition from User Studies to Functional Requirements to Technical Specification 109
7.1 Introduction 109
7.2 Explaining the Concepts of FRs and TS 110
7.3 From URs to FRs: Reaching a Common Understanding 111
7.4 Completing the FRs 112
7.4.1 Presentation of the FRs 113
7.5 Translating the FRs to Technical Specs 113
7.6 Recommendations 116
7.6.1 Common Understanding of Future System Use 116
7.6.2 Abstract Technical Concepts 117
7.6.3 Central Role of FRs 118
7.6.4 The Initial Version of FRs 118
7.6.5 More General: Vehicles for Communication Are Crucial 118
7.6.6 One Coordinator for FRs 118
7.6.7 Iterative Multidisciplinary Process to FRs 118
7.6.8 Translation Process of FRs to TS 119
8 Dementia-Related and Other Factors to Be Taken into Account When Developing ICT Support for People with Dementia Lessons from Field Trials 120
8.1 Introduction 121
8.2 The People with Mild Dementia that Participated in the First Phase of the COGKNOW Project 122
8.2.1 Group Characteristics 122
8.2.2 Methods to Assess Disabilities and Other Relevant Features 123
8.2.3 Disabilities of Participants 124
8.2.4 Relevant Background Characteristics and Environmental Features 125
8.3 Functional Requirements Compensating for Disabilities and Personal and Environmental Factors 126
8.3.1 Supporting Memory 127
8.3.2 Supporting Social Contact 127
8.3.3 Supporting Activities in Daily Life 127
8.3.4 Supporting Feelings of Safety 128
8.4 Opinions on User Friendliness and Usefulness of the CDNv-1 128
8.5 Conclusions 131
References 133
Part III Pervasive Healthcare Technology 135
9 The Role of Context-Aware Computing in Support of People with Dementia 136
9.1 Introduction 136
9.2 Context-Aware Computing 137
9.3 Context Environments 139
9.4 Context-Driven Interaction 141
9.5 Towards Context Reasoning and Context Prediction 143
9.6 Context-Aware Computing in Support of People with Dementia 146
9.7 Conclusion 147
References 147
10 Prototyping Cognitive Prosthetics for People with Dementia 149
10.1 Introduction 149
10.2 Initial Requirements 150
10.3 System Design and Components 151
10.4 Stationary Device 152
10.5 Mobile Device 152
10.6 Sensor Network 152
10.7 Server 153
10.8 Methodology 153
10.9 Services 155
10.9.1 Remembering 156
10.9.2 Communication 160
10.9.3 Daily Activities 162
10.9.3.1 Listening to Music 162
10.9.3.2 Motivation Towards Eating 162
10.9.3.3 Assistance with Activities 163
10.9.3.4 Safety 164
10.9.3.5 Door Warning 165
10.9.3.6 Emergency Contact 165
10.9.3.7 Night-Time Wandering 166
10.10 Conclusions 166
References 167
11 ICT Interface Design for Ageing People and People with Dementia 168
11.1 Introduction 168
11.2 Ageing and Interface Design 171
11.2.1 Age-Related Interface Issues 172
11.2.2 Special Requirements Relating to Older People 174
11.2.3 Emerging Approaches 176
11.2.4 A Broader Technology-Related Perspective 178
11.2.5 Specific Interface Design Issues for People with Dementia 183
11.2.5.1 Dementia in User-Centred Design 183
11.2.5.2 Previous Research for ICT and People with Dementia 184
11.2.5.3 Development of GUIs (Graphical User Interfaces) for People with Dementia 185
11.3 Other Issues 185
11.4 Discussion and Conclusion 186
References 189
Part IV Evaluation and Assessment of Cognitive Prosthetics 192
12 Practical Issues when Planning for Field Trials 193
12.1 Introduction 193
12.2 Preparatory Phase 193
12.3 Actual Trial Phase 195
12.4 Post-test Procedure 196
12.5 Conclusions 196
13 Evaluation of Cognitive Prosthetics 198
13.1 Introduction 198
13.2 Evaluation Design 200
13.2.1 Settings 200
13.2.2 Procedures 200
13.2.3 Analysis 202
13.2.4 Participants 202
13.3 Experiences from the Evaluation 203
13.3.1 Interviewing the Person with Dementia 203
13.3.2 Interviewing the Family Member/Carer 204
13.3.3 Observations 204
13.3.4 In Situ Measurements 205
13.3.5 Experiences of the Analysis Process 205
13.4 Discussion 206
13.5 Conclusion 206
References 207
14 Measuring the Impact of Cognitive Prosthetics on the Daily Life of People with Dementia and Their Carers 208
14.1 Introduction 209
14.2 Aims of the COGKNOW Project and Potential Impact 209
14.3 Selection of Measuring Instruments to Evaluate the Impact of the CDN 210
14.3.1 General Considerations When Selecting Impact Measures 210
14.3.2 Considerations and Selection of Instruments in the COGKNOW Project 211
14.3.2.1 General Considerations in the COGKNOW Project 211
14.3.2.2 Primary General Impact Measures 212
14.3.2.3 Impact Measures for the Four Areas of Support 213
14.3.2.4 Secondary Impact Measures 214
14.3.2.5 Measurement Instruments to Describe the Test Population 214
14.4 Experiences with the (Impact) Measures in the First Cycle of the Project 215
14.5 Conclusion 215
Appendix 1: Experienced Autonomy 217
Appendix 2: Dementia Coping Questionnaire 218
References 220
15 Technology and Dementia: The Way Ahead 222
15.1 Introduction 223
15.2 What Current Seniors Tell Us About the Future 223
15.3 What Future Seniors Tell Us About the Future 225
15.4 An Idealized Future 226
15.5 The Future Is Almost Now 227
15.6 Realizing a Future of Ambient Home Technology for Seniors Person-Centered Considerations 229
15.7 Realizing a Future of Ambient Home Technology for Seniors Technology and System Transformations 231
References 234
Index 236

Produkt-Details

• Erscheint lt. Verlag: 2.2.2010
• Reihe/Serie: Advanced Information and Knowledge Processing
• Reihe/Serie: Advanced Information and Knowledge Processing
• Zusatzinfo: XII, 226 p. 33 illus.
• Verlagsort: London
• Sprache: englisch
• Themenwelt: Geisteswissenschaften
• Themenwelt: Mathematik / Informatik ► Informatik ► Grafik / Design
• Themenwelt: Mathematik / Informatik ► Informatik ► Netzwerke
• Themenwelt: Medizin / Pharmazie ► Gesundheitswesen
• Themenwelt: Medizin / Pharmazie ► Medizinische Fachgebiete ► Geriatrie
• Themenwelt: Medizin / Pharmazie ► Medizinische Fachgebiete ► Psychiatrie / Psychotherapie
• Schlagworte: Assessment • Cognitive prosthetics • context-aware computing • eInclusion • Electronic Assistive Technology • Evaluation • Participative design • Pervasive Computing • Pervasive healthcare • privacy • Telecare and Telehealth • ubiquitous computing • user-centred desi • User-centred Design
• ISBN-10: 1-84882-551-X / 184882551X
• ISBN-13: 978-1-84882-551-2 / 9781848825512