The Person with Alzheimer's Disease
Johns Hopkins University Press (Verlag)
978-0-8018-6873-3 (ISBN)
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Few families are untouched by Alzheimer's disease or a related dementia. Moving accounts of what it is like to care for someone with this disease have already been published, as well as how-to books that offer caregivers advice and information on coping. But this book is the first to provide a comprehensive report of what it is like to have dementia oneself-the subjective experience of living with progressive memory loss. Each chapter discusses a different aspect of having dementia, from the initial assessment and diagnosis through placement in a nursing home. The discussions are grounded in qualitative research and case studies, which convey the variable and personal nature of the experience. They seek to help clinicians, researchers, students, and caregivers (both professionals and family members) understand the experience of dementia, and thereby to promote better caregiving through a person-centered approach.
Contributors: Kathleen Kahn-Denis, Judson Retirement Community; Casey Durkin, a psychotherapist in Cleveland, Ohio; Jane Gilliard, Dementia Voice, UK; Phyllis Braudy Harris, John Carroll University; John Keady, University of Wales, UK; John Killick, University of Stirling, UK; Rebecca G. Logsdon, University of Washington; Charlie Murphy, University of Stirling, UK; Alison Phinney, University of British Columbia, Canada; Steven R. Sabat, Georgetown University; Dorothy Seman, Alzheimer's Family Care Center, Chicago; Lisa Snyder, University of California, San Diego; Jane Stansell, Alzheimer's Family Care Center, Chicago; Gloria Sterin, Shaker Heights, Ohio; Jon C. Stuckey, Messiah College; Robyn Yale, Consultant to the Alzheimer's Association, San Francisco; Rosalie Young, Wayne State University School of Medicine.
Phyllis Braudy Harris is a professor in the Department of Sociology and director of the Aging Studies Program at John Carroll University. She is co-editor of Dementia: The International Journal of Social Research and Practice.
List of Contributors
Acknowledgments
Introduction
Prologue: Notes from The Crying Room
Part I: The Medical Experience
1. Testing Times: The Experience of Neuropsychological Assessment for People with Suspected Alzheimer's Disease
2. Medical Experiences and Concerns of People with Alzheimer's Disease
Part II: The Impact of the Diagnosis on Everyday Life
3. Living with the Symptoms of Alzheimer's Disease
4. Making the Most of Everyday: Quality of Life
5. Selfhood and Alzheimer's Disease
6. Social and Family Relationships: Establishing and Maintaining Connections
7. Meaningful Communication throughout the Journey: Clinical Observations
8. Connecting to the Spirit
9. Building Resilience through Coping and Adapting
Part III: Experiences with Fornal Services
10. The Experience of People with Dementia in Community Services
11. Volunteerism: Contributions by Persons with Alzheimer's Disease
12. The Experience of Support Groups for Persons with Early-Stage Alzheimer's Disease and Their Families -
13. The Person with Dementia and Artwork: Art Therapy
14. "I Can't Place This Place at All": The Nursing Home Experience
Index
| Erscheint lt. Verlag | 1.8.2002 |
|---|---|
| Zusatzinfo | 2 Line drawings, black and white; 13 Halftones, black and white |
| Verlagsort | Baltimore, MD |
| Sprache | englisch |
| Maße | 152 x 229 mm |
| Gewicht | 556 g |
| Themenwelt | Sachbuch/Ratgeber ► Gesundheit / Leben / Psychologie ► Krankheiten / Heilverfahren |
| Geisteswissenschaften ► Psychologie ► Klinische Psychologie | |
| Medizin / Pharmazie ► Medizinische Fachgebiete ► Geriatrie | |
| Medizin / Pharmazie ► Medizinische Fachgebiete ► Neurologie | |
| ISBN-10 | 0-8018-6873-4 / 0801868734 |
| ISBN-13 | 978-0-8018-6873-3 / 9780801868733 |
| Zustand | Neuware |
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