Children and Youth with Complex Cerebral Palsy
Mac Keith Press (Verlag)
978-1-909962-98-9 (ISBN)
Summary points at the end of each chapter provide at-a-glance access to key recommendations. In addition, an Appendix provides adaptable care tools to guide clinicians in evaluation, preventive care and crisis management.
Importantly, the book includes contributions from parents of children with cerebral palsy and youth with cerebral palsy, providing unique and critical wisdom for family-centred care. Parents and families of children and youth with complex cerebral palsy will particularly appreciate the inclusion of chapters on adolescence, transition to adulthood, and growing up, growing well with cerebral palsy.
Laurie Glader is an Assistant Professor at Harvard University Medical School. She trained in Developmental and Behavioral Pediatrics, ultimately focusing on children with medical complexity. Since 1997 she has directed the Complex Care Service Outpatient Program at Boston Children's Hospital (BCH), and provides patients with comprehensive medical care and developmental oversight. Her particular area of interest is children with cerebral palsy and models of care delivery. She is co-director of the large multi-disciplinary Cerebral Palsy and Spasticity Center at BCH. She is active in the American Academy of Cerebral Palsy and Developmental Medicine. Richard Stevenson is Professor of Pediatrics at the University of Virginia School of Medicine in the Division of Developmental Pediatrics, where he has been on the faculty since 1989. He is an attending pediatrician at the Child Development and Rehabilitation Center (CDRC) of the University of Virginia Children's Hospital, caring for children across the range of acquired and congenital disabilities. He is active in clinical care, education, research and administration. He is Past President of the American Academy for Cerebral Palsy and Developmental Medicine. His main interest and expertise relates to the care of children with cerebral palsy, and he has particular empathy for children with complex needs.
Author Appointments
Acknowledgements
Preface
Opening Quote
1. Overview and Introduction
Richard Stevenson and Laurie Glader
2. Functional Assessment and Goals of Management
Jilda N Vargus-Adams and Andrea L Paulson
3. Hypertonia
Darcy Fehlings, Anne Kawamura, Cecilia Lee and
Amber Makino
4. Musculoskeletal/Orthopedic Management
Mark J Romness and Victor Anciano
5. Seating, Mobility, and Equipment Needs
Christopher D Lunsford and Jonathan Greenwood
6. Osteoporosis and Fractures
Steven J Bachrach and Heidi H Kecskemethy
7. Feeding and Nutrition
Valentina Intagliata, Eva Delaney and Mary C Bickley
8. Gastrointestinal Issues
Beate Beinvogl and Munir Mobassaleh
9. Overview of Pulmonary and Sleep Disorders in
Children with Complex Cerebral Palsy
Umakanth Katwa and Sebastian K Welsh
10. Speech and Communication
John M Costello and Elizabeth N Rose
11. Cognitive and Sensory Impairment
Katheryn F Frazier
12.Challenging Behaviors, Sleep and Toileting
Alisa Bahl and Kurt A Freeman
13. Mental health in Children and Adolescents with
Cerebral Palsy
Kerim M Munir and Ikram Rustamov
14. Pain and Irritability
Julie Hauer
15. Seizures and Epilepsy in Children with Cerebral
Palsy
John R Mytinger and Howard P Goodkin
16. Urologic Issues
Stuart Bauer
17. Adolescence and Sexuality
Susan Hayden Gray
18. Transition to Adulthood
Kitty O'Hare and Claudio Melo de Gusmao
19. Evidence Based Care: A Tool Chest for Helping
Families Navigate Treatment Options
Lisa Samson-Fang
20. Difficult Topics and Decision Making
Jim Plews-Ogan and Richard I Grossberg
21. Through the Eyes of Parents
Michele Shusterman, Carol Shrader and
Jennifer Lyman
22. Growing up, Growing Well with Cerebral Palsy
Andrew J Smith, Chelsea Strawser, Benjamin
Schrader, Jaylan Norfleet and Garey Noritz
Appendix: Care Tools for Clinical Practice
| Erscheinungsdatum | 28.01.2019 |
|---|---|
| Reihe/Serie | Practical Guides from Mac Keith Press |
| Verlagsort | Cambridge |
| Sprache | englisch |
| Maße | 170 x 240 mm |
| Gewicht | 804 g |
| Einbandart | kartoniert |
| Themenwelt | Medizin / Pharmazie ► Medizinische Fachgebiete ► Orthopädie |
| Medizin / Pharmazie ► Medizinische Fachgebiete ► Pädiatrie | |
| Schlagworte | Zerebralparese |
| ISBN-10 | 1-909962-98-8 / 1909962988 |
| ISBN-13 | 978-1-909962-98-9 / 9781909962989 |
| Zustand | Neuware |
| Haben Sie eine Frage zum Produkt? |
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