In the Shadow of Illness (eBook)

Parents and Siblings of the Chronically Ill Child

Myra Bluebond-Langner (Autor)

eBook Download: EPUB

2020
328 Seiten
Princeton University Press (Verlag)
978-0-691-21470-2 (ISBN)

Infos

A revealing account of how families adapt to living with a chronically ill childWhat is it like to live with a child who has a chronic, life-threatening disease? What impact does the illness have on well siblings in the family? Myra Bluebond-Langner suggests that understanding the impact of the illness lies not in identifying deficiencies in the lives of those affected, but in appreciating how family members carry on with their lives in the face of the disease's intrusion.The Private Worlds of Dying Children, Bluebond-Langner's previous book, now considered a classic in the field, explored the world of terminally ill children. In her new book, she turns her attention to the lives of those who live in the shadow of chronic illness: the parents and well siblings of children who have cystic fibrosis. Through a series of narrative portraits, she draws us into the daily lives of nine families of children at different points in the natural history of the illness-from diagnosis through the terminal phase. In these portraits, as family members talk about their experiences in their own words, we see how parents, well siblings, and the ill children themselves struggle, in different ways, to contain the intrusion of the disease into their lives.Bluebond-Langner looks at how parents adjust their priorities and their idea of what constitutes a normal life, how they try to balance the needs of other family members while caring for the ill child, and how they see the future. This context helps us understand how well siblings view the illness and how they relate to their ill sibling and parents. Since the issues raised are not unique to cystic fibrosis but are common to other chronic and life-threatening illnesses, this book will be of interest to all who study, care for, or live with the seriously ill.

Produkt-Details

• Erscheint lt. Verlag: 30.6.2020
• Zusatzinfo: 3 tables
• Sprache: englisch
• Themenwelt: Sachbuch/Ratgeber ► Gesundheit / Leben / Psychologie ► Krankheiten / Heilverfahren
• Themenwelt: Geisteswissenschaften ► Psychologie
• Themenwelt: Medizin / Pharmazie ► Medizinische Fachgebiete ► Pädiatrie
• Themenwelt: Sozialwissenschaften ► Pädagogik ► Sozialpädagogik
• Themenwelt: Sozialwissenschaften ► Soziologie ► Mikrosoziologie
• Schlagworte: abdominal pain • Accident Proneness • Adelphi University • adolescence • Aerosol • allergy • Anger • Angst • Antibiotics • anti-inflammatory • Asthma • attempt • Birth Control • birth order • blood gas • Breathing • Bronchitis • Bronchodilator • bronchospasm • Bronchus • burial • Burkholderia cepacia complex • Burton, Lindy • Career • Carpenter, P. J. • Casket • Catastrophic illness • catheter • Cephalosporin • Cerebral palsy • child care • chronic condition • civil inattention • clinical trial • Clinician • Coat (animal) • Colistin • Complication (horology) • Complication (medicine) • Concoction • Consciousness • Cortisone • cough • Crawford, P. • cremation • Cromoglicic acid • Cure • Cystic fibrosis • Cystic Fibrosis Foundation • Death • defecation • Delisi, S. • Depression (mood) • Developmental disability • Diabetes mellitus • Diagnosis • dietary supplement • Digestion • Disability • Disease • Drotar, D. • Dyspnea • eating • eating problems • Embarrassment • Enzyme • esomeprazole • Eventuality (phrenology) • Everyday life • fat malabsorption, defined • field journals • funeral home • Gallimore, R. • Gastrostomy • gene therapy • grandparent • Green, Joanna • Headache • Health • healthy children • hearing loss • Hospice • Hospital • hospital stay • hostility • Household • human behavior • Hyperactivity • Independence • Indication (medicine) • Institution • intellectual disability • internalizing disorder • Intravenous therapy • irritability • Jealousy • joking • Kidney Disease • Knafl, Kathleen A. • Kupst, M. J. • Landfill • Lask, Bryan • Leprosy • leukemia • Life Expectancy • Lindsay, Mary • Lobato, D. • Lunch • Lung volumes • Make a Difference • Malignancy • Maturation • meal • Medical Diagnosis • month • morphine • Mrs. • Mucus • Multivitamin • My Brother and Me • My Child • Nasal polyp • National Science Foundation • nebulizer • newsletter, by parents • newspaper • nocturnal enuresis • Nurse Practitioner • nursing school • nutrient • Oncology • Opportunism • optimism • optimism, of parents • Oxygen saturation (medicine) • Pain • pancreas • Parent process • pathogenic bacteria • Pathology • Pediatrics • Phelan, P. D. • physical therapy • Physician • pity • playing with ill child • Pneumonia • Poster child • Postural drainage • prognosis • Pseudonym • psychopathology • Psychosomatic Medicine • rectal prolapse • regimen • Regression • Reminders (application) • respiratory disease • Role • Rutgers University • Ryan, M. • Sensitivity • Shame • sibling • sibling relationship • Sinusitis • Snack • Snack Bar • Social Problems • social rejection • Social Work • Socioeconomic Status • somatic disorders • spirometry • Sputum • St. Christopher's Hospital for Children • Subclavian vein • Sulfate • Sweat test • Sympathy • Symptom • Technology • terminal illness • therapy • The Sick Child • The Various • Thought • Ticarcillin • Tolerance • To the Contrary • To the Point • transcripts of interviews • Tucker, Ford • tune-up • Uncertainty • Unconsciousness • vasculitis • Viewing (funeral) • Viral pneumonia • Vitamin • weight loss • withdrawal behavior • Worry • Zoeller, Linda H.
• ISBN-10: 0-691-21470-0 / 0691214700
• ISBN-13: 978-0-691-21470-2 / 9780691214702